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caregiver support


Parents and caregivers who have children with disabilities can often benefit from support. Support can include getting information, learning about resources, using support services, and just sharing experiences with others.

Many times, some of the best sources of information and support come from other parents and caregivers. Some ways to find other families to connect with include:

*organizations specific to your child's diagnosis (i.e., Dup 15q Alliance)
*parent groups organized through the school district
*groups on social media sites such as Facebook (local groups, diagnosis specific groups, etc.)

​See below for some other resources for parents and caregivers.

Parent support

Parent2parent will match you with a support parent.

Parent Centers run by the Center for Parent Information and Resources have some support services.
​
Non-profit organizations

There are several organizations that help parents get information about services that are designed for people in a certain state. You can search to see if there are any organizations for your state or local area. Here are some examples:
  • Family TIES (Massachusetts)
  • MyPlaceCT (Connecticut)
  • Parent Companion (Texas)
  • ParentToParent of New York State (New York)
  • Vermont Family Network (Vermont)
Respite travel for caregivers (free or reduced cost housing for time away from home)
  • A Mother's Rest ​(various locations in the U.S.)
  • Nancy's House (Pennsylvania)
  • One Little Cottage (Michigan)
  • Women's Respite Program (New York)
​
Housing for caregivers traveling for medical care for their children
  • Healthcare Hospitality Network​
  • Ronald McDonald House

​
Also, always check the website at the health care location you are going to. They may have housing support available. You can also ask the medical provider.
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  • Home
  • About me
    • Blog
  • Resources
    • courses
    • youtube
    • for everyone >
      • health literacy
      • doctor visits
      • health info online
      • reading medicine labels
      • understanding health insurance
    • for older adults
    • for parents >
      • kids and COVID-19
      • kids and health
      • kids and technology
    • for teens
    • for kids
    • for health providers
  • Disability
    • what are disabilities
    • disability inclusion
    • disability services
    • health care
    • early intervention 0-3
    • pre-school years 3-5
    • school years K-12
    • adults
    • caregiver support
    • social media
    • media
    • camps and programs
    • clothing